Every child is unique, and some children face extra physical or learning challenges. Parents often have questions about sources of information and support. This Q&A suggests resources that parents of young children may find useful.
Can I get my child evaluated for a possible developmental delay before they start school?
Yes, you can. The Illinois State Board of Education (ISBE), in cooperation with the Illinois Department of Human Services (IDHS), is responsible for ensuring developmental screening of infants, toddlers, and preschool children under the federal and state regulations of the Individuals with Disabilities Education Act (IDEA).
Illinois parents can learn more about getting developmental screening in two ways. If your child is 3 years old or older, contact your local school district to request a screening. If your child is younger than age 3, contact a Child and Family Connections Office in your area.
Note for early care and education providers: The Child Find Project provides public awareness materials as part of the comprehensive Child Find system. To order public awareness materials from Child Find, please call 800-851-6197 or visit https://www.childfind-idea-il.us. To refer a child or family to the early intervention services system, please call 800-323-GROW (800-323-4769) (Voice and TTY) or visit the Getting Started in Early Intervention webpage.
Is the local school district required to provide services for my preschool child?
If, after going through screening and evaluation through your local school district, your child is determined eligible for early childhood special education and related services, the school district is required to provide those services. To learn more about the process leading up to special education services, please see our special education assessment tip sheet series, meant to be read in this order:
- What Is Assessment?
- Special Education for Preschool-Aged Children: Referral and Getting Started
- Special Education for Preschool-Aged Children: Participating in the Assessment
- Special Education for Preschool-Aged Children: Reviewing Results and Next Steps
- What Is an IEP?
Professionals with training and expertise in special education services implement the federal Individuals with Disabilities Education Act (IDEA), Part B, by supporting the educational needs of young children in a variety of settings such as preschool, childcare, prekindergarten/Preschool for All, Head Start, and other early childhood programs.
School districts are required to provide a free and appropriate public education (FAPE) for all children with disabilities who are age 3 through age 21. Parents can read a publication about their child’s rights regarding special education in Illinois. Services through the school district must begin at age 3 for a child who is already served in an early intervention program. (An exception to this rule may occur for children with summer birthdays, who can continue receiving early intervention services until the beginning of the school year.) Local Education Agencies (LEAs), such as school districts, work closely with Child and Family Connections offices, supporting families in planning for their child’s transition to early childhood services, preschool, or other community programs. Learn more about this process by reading the following documents:
- Local Education Agency Birth to Three Child Find Responsibilities
- Early Intervention to Early Childhood Special Education Transition Frequently Asked Questions
- Transition at Age 3: Leaving the Early Intervention Program
- When I’m Three Transition Guide
- Questions Parents Should Ask About EI-EC Transition
- Early Intervention Transition Planning Conference
- Transition: Understanding Family Rights
Where can I find a parent support group?
Parents of young children with special needs often find other parents a great source of support, encouragement, and resources.
Parent groups related to a specific disability are listed in the following sections of this Q&A. Parent groups that serve parents of children with all types of disabilities include the following:
- Family Resource Center on Disabilities (FRCD)
- Center for Parent Information and Resources
- Family Matters Parent Training & Information Center
Where can I find information on autism?
Autism spectrum disorder (ASD) is a developmental disability that can cause social, communication, and behavioral challenges. ASD begins during childhood and lasts throughout a person’s life. Learn more by visiting the following pages:
- What Is Autism?
- Autism: Be Aware of the Signs
- Supporting Children with Autism in Child Care and at Home
- The Autism Program of Illinois
- Autism: Resource Guide
My child was born with Down syndrome. Where can I find more information on this topic?
A child with Down syndrome has an extra copy of chromosome 21. Individuals with Down syndrome share some common characteristics. Usually, children with Down syndrome have delays in physical and/or intellectual development. Some individuals have other health problems, including hearing and vision problems; thyroid, intestine, and bone problems; and congenital heart defects that may require surgery. However, people with Down syndrome often live productive lives well into old age. Additional resources are listed below.
- National Down Syndrome Congress
- National Down Syndrome Society
- Kids Health: Down Syndrome (for parents)
- Down Syndrome Organizations and Community Groups in Illinois
- Facts about Down Syndrome for New and Expectant Parents
- Infants and Toddlers with Down Syndrome (resource guide)
Where can I find information to support a child who is Deaf or hard of hearing?
Research indicates that children with a hearing loss are helped by early identification and intervention and achieve a higher level of language development than children who do not take part in early intervention. Hearing loss may be detected at birth through newborn screenings, or may be discovered during routine screenings during doctor visits or in early childhood settings. Learn more about hearing and young children in our tip sheet, Do You Hear What I Hear?
Intervention for children who are Deaf or hard of hearing usually focuses on the child’s language and communication development and may include signed and spoken language, as well as assistive technology such as hearing aids. Additional resources are listed below.
- American Society for Deaf Children
- National Institute on Deafness and Other Communication Disorders (NIDCD)
- National Center on Deaf-Blindness
- Illinois Services for the Deaf, Hard of Hearing, and DeafBlind
- Illinois Early Hearing Detection & Intervention Program: Sound Beginnings
Where can I find resources to support a child who is blind or visually impaired?
Blindness or visual impairments may be detected during routine screenings during doctor visits or in early childhood settings. Learn more about vision and young children in our tip sheets:
Parents of children with significant vision support needs can connect with other parents and find other resources related to their child’s needs by visiting the following pages:
- National Federation of the Blind of Illinois
- National Center on Deaf-Blindness
- Family Connect: Education for Babies and Toddlers Who Are Blind or Visually Impaired
- Family Connect: Preschoolers Who Are Blind or Visually Impaired
IEL Resources
- Tip sheets:
- Autism: Be Aware of the Signs
- Do You Hear What I Hear?
- Eyes Right! Find Amblyopia Early
- Eyes Right! Your Child’s Vision
- Special Education for Preschool-Aged Children: Participating in the Assessment
- Special Education for Preschool-Aged Children: Referral and Getting Started
- Special Education for Preschool-Aged Children: Reviewing Results and Next Steps
- What Is an IEP?
- What Is Assessment?
- Q&A: What Is Autism?
- Resource Lists:
Web Resources
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About the Child Find Project
Source: Child Find Project
Child Find Project was created to offer information and resources related to the earliest possible identification of young children and their families who may benefit from early intervention and special education services. Child Find is a component of the Individuals with Disabilities Education Act (IDEA) that requires states to have a comprehensive system to locate, identify, and refer as early as possible all children with disabilities, aged birth to 21, for early intervention or special education services.
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American Society for Deaf Children
Source: American Society for Deaf Children
ASCD is a nonprofit organization that supports and educates parents of deaf children.
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Autism Resource Guide
(also in Spanish)Source: Illinois Early Intervention Clearinghouse
This resource guide includes books, videos, organizations, articles and other resources related to Autism.
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Center for Parent Information and Resources
Source: Center for Parent Information and Resources
The CPIR supports the Parent Centers who serve families of children with disabilities.
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Down Syndrome
Source: KidsHealth
This article for parents provides information on Down syndrome.
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Down Syndrome Organizations and Community Groups in Illinois
Source: Illinois Department of Public Health
This list contains Down syndrome organizations and community groups that are active in Illinois.
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Early Intervention to Early Childhood Special Education Transition Frequently Asked Questions
Source: Illinois State Board of Education
This document provides answers to many questions related to transition from early intervention to early childhood special education.
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Early Intervention Training Program at the University of Illinois
Source: Early Intervention Training Program (EITP)
This provides information on information, training opportunities and resources for early intervention professionals in Illinois.
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Education for Babies and Toddlers Who Are Blind or Low Vision
Source: Family Connect
This webpage gives families of infants and toddlers information about parents as teachers, the impact of visual impairment, and additional Family Connect resources.
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Extended Early Intervention Option for Children with Summer Birthdays (May 1 – August 31)
Source: Illinois State Board of Education
This notice from 2021 indicates how some children receiving Illinois EI services with summer birthdays will be eligible for extended early intervention services.
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Facts about Down Syndrome for New and Expectant Parents
Source: Illinois Department of Public Health
This web resource gives information about Down syndrome, including understanding Down syndrome and getting more support, for new or expectant parents.
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Family Matters Parent Training and Information Center
Source: Family Matters Parent Training and Information Center
This website provides information, resources and educational resources for families of children with disabilities.
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Family Resource Center on Disabilities
Source: Family Resource Center on Disabilities
The FRCD provides parents of children with disabilities with information, training, and assistance.
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Getting Started in Early Intervention
(also in Spanish)Source: Illinois Early Intervention Clearinghouse
This page includes information on making a referral to a local Child & Family Connections office (CFC) for an evaluation. All CFC offices have a parent liaison on staff to provide consultation to EI teams and families. Parent liaisons are parents or guardians of a child with disabilities or developmental delays.
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IDEA: Individuals with Disabilities Education Act
Source: U.S. Department of Education
This website provides information on the Individuals with Disabilities Education Act
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Illinois Department of Human Services
Source: Illinois Department of Human Services (IDHS)
The Department of Human Services provides Illinois residents with streamlined access to integrated services, especially those who are striving to move from welfare to work and economic independence, and others who face multiple challenges to self-sufficiency.IDHS provides equitable access to social/human services, supports, programs, and resources to enhance the lives of all who we serve.
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Illinois Early Hearing Detection and Intervention Program
Source: Sound Beginnings
Illinois EHDI works with parents and providers to ensure all babies get screened for hearing loss no later than 1 month of age; all infants who do not pass their hearing screen receive a diagnostic evaluation no later than 3 months of age; and all infants with a hearing loss enroll in early intervention services no later than 6 months of age.
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Illinois State Board of Education
Source: Illinois State Board of Education
This website provides information for educators, families and stakeholders regarding education in the state of Illinois.
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Infants and Toddlers with Down Syndrome
Source: Illinois Early Intervention Clearinghouse
This resource guide introduces important books, videos, and information resources available from the EI Clearinghouse on Down syndrome.
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Local Education Agency Birth to Three Child Find Responsibilities and Reporting Child Find Screening
Source: Illinois State Board of Education
This 2018 memo from ISBE and IDHS to Special Education administrators clarifies and reinforces the responsibilities of the LEAs for Child Find.
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Look What I Can Do: Early Intervention for Young Children with Developmental Delays
Source: Child Find Project
This website provides free resources associated with the Child Find project.
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National Center on Deaf-Blindness
Source: National Center on Deaf-Blindness
NCDB is a federally funded service that identifies, coordinates, and disseminates information related to children and youth who are deaf-blind.
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National Down Syndrome Congress
(also in Spanish)Source: National Down Syndrome Congress
The National Down Syndrome Congress is dedicated to an improved world for individuals with Down syndrome. NDSC provides resources of support and information for anyone touched by or seeking to learn about Down syndrome.
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National Down Syndrome Society
Source: National Down Syndrome Society
Founded in 1979, the National Down Syndrome Society (NDSS) supports and advocates for the Down syndrome community by focusing on three key areas of programming: resources and support, policy and advocacy, and community engagement.
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National Federation of the Blind Illinois
Source: National Federation of the Blind Illinois
The National Federation of the Blind of Illinois is a 501c(3) nonprofit volunteer membership organization comprised of blind and interested sighted persons of all ages, their families, and friends. Local chapters, divisions, committees, programs, projects and well-trained leaders help newly blind people adjust to vision loss, and promote the full participation and integration of blind people in communities.
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National Institute on Deafness and Other Communication Disorders
(also in Spanish)Source: National Institute on Deafness and Other Communication Disorders (NIDCD)
NIDCD is part of the National Institutes of Health (NIH) and supports research and provides information related to communication impairments.
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Office Locator
Source: Illinois Department of Human Services (IDHS)
This early intervention office locator allows you to search by your Illinois county to find your local Child and Family Connections office.
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Preschoolers Who Are Blind or Low Vision
Source: Family Connect
This webpage gives families of preschoolers information about school for visually impaired children from ages three through six, transitioning to independence, and connecting with other parents of children who are blind or visually impaired.
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Questions Parents Should Consider Asking About EI-EC Transition
Source: Early Intervention Training Program (EITP)
This document, found on the EITP blog webpage, provides guidance for parents transitioning a child from early intervention to early childhood education or early childhood special education.
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Special Education Parents/Guardians Information
Source: Illinois State Board of Education
Educational Rights and Responsibilities: Understanding Special Education in Illinois is a document, developed by the Illinois State Board of Education for parents and others to learn about the educational rights of children who have disabilities and receive special education services. It is available in a variety of languages.
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State Government Services for the Deaf and Hard of Hearing
Source: Illinois.gov
This webpage provides information about from the Illinois Deaf and Hard of Hearing Commission. It describes resources related to advocacy, education, equipment, state employment, and ADA information for the Deaf and Hard of Hearing in Illinois.
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The Autism Program
Source: The Autism Program of Illinois (TAP)
The Autism Project (TAP) provides a variety of services and resources throughout the state of Illinois, including a referral service.
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Transition at Age 3 : Leaving the Early Intervention Program
(also in Spanish)Source: Illinois Early Intervention Clearinghouse
This tip sheet discusses the steps involved in a successful transition out of the early intervention system.
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Transition: Understanding Family Rights
(also in Spanish)Source: Illinois Early Intervention Clearinghouse
This document helps families understand their rights as a child transitions from early intervention to the next step in their educational journey.
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When I’m Three Transition Guide
Source: Illinois State Board of Education
This workbook was developed by parents, early intervention, and early childhood personnel to provide information for parents approaching their child’s transition from Early Intervention services to early childhood services.