These resources collectively provide families of children who are DeafBlind with advocacy, technical assistance, and practical guidance. They offer information on connecting with local agencies; learning about DeafBlindness and Protactile; accessing family stories and events; and finding programs, resources, and professionals who can support children’s development and caregiver needs.
Resource lists
This website shares information for parents on deaf-blindness, describes help that is available, and lists national and state-specific resources.
This website serves as a good starting resource for those who are seeking to learn about Protactile and utilize Protactile to connect with their child and members of the DeafBlind community.
This website shares about a program for Deafblind children and includes curriculum skills that are focused on every age, at home activity ideas, and videos of students who are Deafblind.
This website outlines organizations and professionals who will support caregivers of children who are deafblind.
Parents must learn how to interpret and respond to their baby’s communications to form the bonds that become the foundation for development. When a child is deaf-blind, this can be challenging. This factsheet provides strategies for how parents and their young child can learn to engage in enjoyable “conversations.” Resources in Spanish are also provided on this page.
This webpage offers a list of resources for families to connect with local agencies and organizations, learn more about DeafBlindness, access family testimonials, and find events.
The National Family Association for DeafBlind serves families with individuals who are DeafBlind, advocates, and provides information and support.
Deafblind projects provide technical assistance, professional training, family support, and educational resources to improve services and outcomes for children with deafblindness, while also advocating for accurate identification and equitable access to appropriate programs.
This website outlines instructional supports and programs that are available to support children who are deafblind.
